1. More than 18,000 babies are born with sickle cell in Ghana.
18,000 is a huge number for our new generation to be affected with sickle cell. With our increasing population, we stand the risk of increasing the number if information on sickle cell and the awareness is not improved.
2. Sickle cell is the commonest genetic disorder in Ghana and the world at larget.
A genetic disorder is a medical condition that is passed on from birth parents to their baby. There are various genetic disorders but sickle cell is the commonest amongst them. This makes sickle cell an important condition to learn about and talk about.
3. Sickle cell has no define cure yet.
For a common condition like sickle cell, there is not yet a cure. The closest yet is a bone marrow transplant. Sickle cell is a condition that people who have it live with it from birth to death.
4. There are only twork (2) sickle cell clinics in Ghana serving all the thousands of people living with sickle cell in the country. They are at Korle bu and Komfo Anokye Teaching Hospitals.
People living with sickle cell need a comprehensive care which is lacking for most of them due to the highly inadequate nature of their service centers. This inadequacy greatly affects negatively the health and quality of life of people living with sickle cell in Ghana.
5. Sickle cell is 100 percent preventable! (My favourite reason)
Sickle cell is preventable. It is possible to protect your future children from sickle cell which I believe is a responsibility. Being a good parent does not startbegin when your baby is born but from the time you decide you want children in future.
The KSS PROJECT is a sickle cell prevention strategy I developed to target single people, especially the youth to educate them to;
Know their sickle cell status early by going for the screening test.
Share their sickle cell status early with their partners duringthe dating process to avoid later inconvenience .
Stop the relationship early if/when their sickle cell status puts them in a position where they can have babies born with sickle cell. The idea is to protect the future generation from sickle cell.
I’m glad we had this talk. Let me know if it was helpful and post any comments or questions and I’ll get back to you.